Sunday, January 17, 2010


It’s getting ridiculous. In the last 24 hours, we’ve had to change Jake’s bag four times. The last two leaks happened while he was asleep. We caught one at midnight, and then it leaked again sometime between 3:30 and 8:30am. It was a major leak, Jake woke up with his torso covered in poo. It had leaked through his clothes and sheets. It didn’t wake him so he’d slept in his own poo for hours. It distresses me that we didn’t notice, even though we were sleeping in the same room. Paul and I are fraught with worry and fear.


Glovecat said...

:( It sounds like you guys are going through a really difficult time, I don't really know anything about Jake's condition, but from what I've read I can totally empathise with your worry.

Something I've gauged from reading your blog is that you are a very conscientious person, and very caring, and you take a great deal of weight onto yourself. It's clear that you love Jake very, very much, and are doing your very best to take care of him and bring him up in the best way you can. Please don't be too hard on yourself :)

I hope things improve soon,
Sending you a big, virtual hug,
Emily x

nadia said...

Hey there you, crikey, that doesn't sound like fun. Of course you couldn't possible tell if you were sleeping.

Have you tried speaking with his specialist about it? Can't they supply you with bigger bags or something? How long until the date of the reversal?

Biggest of hugs xxx

changapeluda said...

oh no no no

it was a total life experience baby accident Do Not blame yourselves because there is absolutely no need to place any blame at all....

you two are the best parents that little angel could ever have....

i can't wait for his reversal and am praying for his (and yours') WELL BEing!!